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Over Rs. 75 lakh crowdfunded to cover treatment expenses of 2 brothers fighting Hunter’s Syndrome
2024-04-24 07:46:44
News & Society
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Haryana-based couple, Neha and Ravi Jhawar, are currently in a tough situation as they daily witness both their children Kenit and Medhansh battling against death together. 4-year-old Kenit and 2-year-old Medhansh are suffering from Hunter?s Syndrome (Mucopolysaccharidosis II). Hunter syndrome is a rare, inherited disorder in which the body does not properly digest (break down) sugar molecules that affect the physical and mental development and abilities of an individual.
Kenit and Medhansh have difficulty in walking, joint stiffness, respiratory issues, hearing loss, heart problems, and trouble talking. They are in intense pain and their condition will deteriorate further if the treatment is not started soon. The line of treatment suggested by the Doctor is the Enzyme Replacement Therapy (ERT) that will be done at AIIMS, Delhi, while the Bone Marrow Transplant will be done at Narayana Hospital, Bangalore. The total treatment cost for both the children is Rs. 5 crores.
In a heartfelt appeal, Ravi Jhawar, said, ?I work in Punjab National Bank and all our savings have already been utilized for previous treatments and diagnostic tests. My wife who was working earlier left her job so she can take care of both the kids. We are in dire need of funds to begin the treatment. Doctors have suggested that the treatment should be done as soon as possible to avoid any other complications.?
Unable to meet the hefty treatment expenses, Neha and Ravi initiated a crowdfunding campaign on ImpactGuru.com to raise funds of Rs. 5 crores for the treatment of both their boys. In a week?s time, Kenit and Medhansh?s ImpactGuru fundraiser has raised over Rs. 75 lakhs, cumulatively contributed by over 700 donors. The single highest donation received in INR is 5 lakhs.
?Please continue with your generous contributions so we can give our kids their childhood back. No matter how big or small, kindly donate to help ease some of the financial burdens of this unexpected diagnosis and allow us to focus fully on what matters most.? Ravi further appealed.
Company :-Impact Guru
User :- Saba Shaikh
Email :-saba.s@impactguru.com
Mobile:- 8591400108
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